Our PERT campaigners gathered outside parliament parliament after the emergency event

Our emergency event to end the PERT shortages

We held a major event in parliament to ask MPs for their support to end the damaging PERT shortages.

When people get pancreatic cancer, their body can’t digest food properly. This leaves them too poorly for treatment, with lower quality of life – and at risk of starvation.

Simple tablets called Pancreatic Enzyme Replacement Therapy (PERT) – also known as Creon, or Nutrizym – can help people to cope better with treatment and manage their symptoms.

But right now there are major shortages of PERT across the UK, affecting more than 61,000 people.

Find out more about the shortages

A proactive response is needed from the Government to end the shortages.

That’s why, on Wednesday 26 February, we held an emergency event in parliament to ask MPs for their support.

What happened at the event?  

Thanks to 2,275 of our amazing supporters urged their MP to attend. 104 MPs attended joined our event. Thank you for standing with us to call on the Government to end the PERT shortages. Find out if your MP came along.

Our amazing volunteers Bryony, Claire, Michael, Terri and Rachel, spoke passionately to MPs about the impact that the PERT shortages are having on them and their families.

Bryony spoke to a packed room about her experiences of

MPs were keen to understand how the PERT shortages are impacting people with pancreatic cancer in their local constituencies. They wanted to know what next steps are needed to drive progress on this issue both in the short-term and in the long-term.

We heard from the Minister for Medicines Supply

Minister for Medicines Supply, Karin Smyth, spoke at the drop-in about the Government’s commitment to working with Pancreatic Cancer UK, manufacturers, pharmacies, and others within the supply chain to urgently tackle the shortages of Pancreatic Enzyme Replacement Therapy (PERT) affecting thousands of people across the UK.

We also had a productive discussion with the Shadow Secretary of State for Health who and acknowledged that urgent action is critical to end the devastating consequences of these ongoing shortages for people with pancreatic cancer.

We were covered on BBC breakfast!

BBC Health Editor Hugh Pym joined our event to chat with people affected by the PERT shortage. Our activity was featured as part of a lengthy broadcast on BBC Breakfast on Friday 28 February: all about the PERT shortages.

Watch the coverage on iPlayer at 15 minutes in

 

Our open letter for MPs

At the event, over 20 MPs signed our open letter [link] (so far) calling for greater Government action in ending the ongoing shortages. The letter ask for the Department for Health and Social Care to:

  • convene and lead a high-level stakeholder roundtable to address the shortages alongside PERT manufacturers, patient advocacy groups and Government stakeholders to discuss practical measures and solutions to the ongoing crisis
  • produce a detailed action plan and establish a PERT shortages taskforce to help to achieve these crucial next steps
Ask your MP to sign
Campaigning megaphone